Maria Hadjidemetriou was diagnosed with a rare genetic blood disorder Thalassemia also known as Cooley’s Anemia at 2 ½ years of age. Since diagnosis Maria receives two units of blood every 14 days as she is missing the gene that produces healthy red blood cells.
She lives in Downtown Manhattan with her nine years old daughter Julia where she works as a Real Estate Agent. She is a freelance writer as well where she wrote and produced a short documentary film on her disease, Thalassemia: Life Without Boundaries. This short documentary has won two film festival awards one on Humanitarian Awareness. Most recently she wrote a story where it was published in the peer to peer medical journal American Journal of Hematology, “Thalassemia: Yesterday, Today, Tomorrow”.
Maria is a Board Member and Executive Committee Member for the Cooley’s Anemia Foundation and a Board Member for the Thalassemia International Federation that is in association with WHO since 1996. She is a national and international speaker for medical conferences on Thalassemia and a guest speaker with the City of New York alongside New York City’s Commissioner and Chief of Staff. Maria is also an expert patient for the FDA in drug approval and speaks with Pharmaceutical firms on effective drugs.